FTD refers to a group of rare neurological disorders mostly affecting the frontal and anterior temporal lobes of the brain. These areas control “executive functions” such as reasoning, personality, social behavior, movement, speech, language, and certain aspects of memory. FTD usually develops between the ages of 35 and 75 affecting men and women about equally. FTD is believed to make-up only 3% of all dementia cases. Some of the diseases classified as FTD include: Pick’s Disease, FEDP-17, Supranuclear Palsy, Primary Progressive Aphasia and Corticobasal Degeneration.

This FTD and Pick's support forum is an international support group set up by carers of people with various types of fronto-temporal dementia. This includes, but is not limited to, Pick's Disease(PiD), Frontotemporal Dementia (FTD), Primary Progressive Aphasia (PPA), Frontotemporal Lobe Degeneration (FTLD), Dementia with Lewy Bodies (DLB) and Corticobasal Ganglionic Degeneration (CBGD).

The membership is made up predominantly of caregivers, but we also welcome people who suffer from FTD. Because the focus of the group is mainly on the caregiver, FTD sufferers may find the discussions difficult to take. If you have FTD and would like to join, please understand that conversations are blunt and may be painful at times.

The primary purpose of this group is to communicate with one another in a supportive and friendly environment. Many people in our lives outside of the forum have never heard of the types of dementias that we deal with on a day to day basis. We find value in talking with one another about the challenges we face as caregivers and the changes we see in our loved ones.

Although we work very hard to keep this forum a safe place, please follow standard internet protocol when joining. Please consider not sharing your full name, and do not share your home address or telephone number. Please protect your personal information! We will remove this information when we see it.

If you are a registered member and are seeing this message, it is because you aren't logged in. Please log in with your username and password in the box to the right.

Registration Process!

Because we respect and value the privacy of all of our members, there are a few simple steps in the registration process that must be completed before you will be allowed to view the forum.

The following is a simplified version of the steps for joining for users who are comfortable working with an online forum. There is also a complete step by step guide that can be accessed by clicking here for those that need more assistance.

1. The first step is to register. You will receive an email confirming your registration that you must respond to.

2. Once you respond to your confirmation email, you will see a login box. Log in!

3. Once you have logged in, you will be sent to the New Member Application forum. Please introduce yourself and post your reason for joining the forum. Once you have done this, a moderator will review your message. This can sometimes take up to a few hours, as moderators are not always present on the board. When you have been approved, you will be able to access all the features of the forum.

If you have any trouble during the registration process, please contact us at admin@ftdsupportforum.com.

The purpose of this forum is to provide a place for safe and secure communications between people who have been diagnosed with FTD and those who care for loved ones with FTD.

Members are dedicated to supporting one another in a sensitive, respectful and sincere manner.

This forum also encourages increased awareness of FTD within the medical community and the general public, with the belief that knowledge will bring improved access to support networks that are emerging on the internet and elsewhere.

Great places to seek more information.

FTD Support

Association for Frontotemporal Dementias

Pick's Disease Support Group

University of California

Family Caregiver Alliance

National Family Caregiver Association